Synopsis

According to the National Institute of Health (NIH) Genetic and Rare Diseases Information Center (GARD) there are an estimated 20 million people affected by rare diseases. 95% of Rare diseases do not have approved treatment. This dramatic short film sheds light on the struggles families face when confronted with a lesser known disease. The results are often fatal when trying to pinpoint an illness that is not well known as there is not always the medical expertise available for a speedy diagnosis. I Am Rare is a story about a family’s true to life experience of their son’s rare diagnosis, their struggles, and their resilience.