Me, my Dad and Blau

    Pitch Video

    The family of a rare disease child leave their "safety bubble" and reach out to a diverse community in search of a cure.

    Genre: Documentary
    Target Audience: All Audiences
    Target Length: 35 minutes
    Budget: $50,000

    Created By

    Troy Townsin ,  British-Columbia


    Six year old Lexi has an ultra-rare degenerative disease that no-one has ever heard of called Blau syndrome. Her parents have always tried to protect her by ensuring that she stays as far away from germs (and most people) as possible. For years her parents didn't share her diagnosis with her, or others, they worked in isolation looking for a cure. Her parents have just had a paradigm shift. Join Lexi and her dad as they get out into the community and make powerful local connections that move them ever closer to their goal of finding a cure.


    About Blau Syndrome and the Cure Blau Syndrome Foundation

    The Team

    If you have a passion for film-making and want to assist in a project that will inspire and delight audiences everywhere, then we'd love you to join our diverse team. Please contact Project Lead for details.